An Assessment of the Quality of Life of Caregivers of Children Living With Autism in the Greater Accra Region of Ghana

Abstract

Introduction: The study explores the quality of life (QoL) experienced by caregivers of children living with autism in the Greater Accra Region of Ghana. Caregivers of children with autism often face unique challenges that can impact their overall well-being. Understanding the factors influencing their quality of life is essential for developing targeted interventions and support systems. Methods: A descriptive cross-sectional research design using a quantitative approach was used to collect relevant data from caregivers who visited any of the four institutions during the study period. Results: The quantitative analysis revealed significant patterns in caregivers' quality of Life, with educational levels, employment types and sources of knowledge. In this study, however, socio economic status, impact of caregiving, health literacy and religiosity had no significant association with the quality of life of caregivers (p= 0.078, 0.060, 0.563, 0.450 respectively). Also, it was noted from this study that, caregivers with higher monthly family income were 6 times more likely to have a high quality of life. Again, caregivers with lower levels of education have a lower quality of life. Conclusion: The research underscores the multifaceted nature of caregivers' experiences in the context of autism caregiving. The study reveals the need for comprehensive interventions, including improved access to specialized services, workplace flexibility, and enhanced support networks. By addressing the challenges caregivers face, policymakers, healthcare providers, and support organizations can contribute to enhancing the QoL of caregivers of children living with autism in the Greater Accra Region.